Here is the truth: celiac disease can be a very lonely disease.
Not many people have it (one in 100 people) and stories of its apparent absurdity travel around the public like a bad rumour. What isn’t a rumour is how lonely one person can feel when THEY ARE THE ONLY ONE DIAGNOSED WITH IT WITHIN ANY GIVEN STRETCH OF LAND/COUNTY/CITY. Some of those diagnosed keep to them selves. Some of those diagnosed might to be worried to be truthful about their disease and therefore never get to meet others with the same feeling of loneliness. Having a disease like celiac and being the only one with it indoor family can make for some trying times.
Hell. Even if you’re they only one, defending yourself without backup is terrible.
There is nothing wrong with feeling alone when you’re diagnosed with celiac. But, know that there is support out there and people out there and organizations out there that have it and deal with it and can help you get through ANY troubling times you might be having.
I’m one of the lucky ones. I consider myself lucky because am a diagnosed celiac, I have nothing against this disease. I’m lucky because I have backup, backup in the form of my mother who is also diagnosed with it. She has been diagnosed as long I as I have. Her and I talk about it, compare notes. Argue about it. Having a celiac partner makes things a lot easier.
It truly is grand to have my mother diagnosed with celiac, because I count on her and trust her and have mega-support from her all the time.
There was a time, when my nephew, at four years old was put on a gluten-free diet and, as bad as it sounds, I was excited that he was. For my own selfish reasons, I wanted to be his cool older uncle who Had to eat gluten-free food with him at family functions and when we traveled in and around the province.In my own selfish ways, I was happy he had to eat gluten-free, NOT diagnosed with celiac disease, but on the same diet I was on, and placed on it viamedical professional.
Then he got tested for celiac disease.
Then it was found out he no longer needed to be on a gluten-free diet.
Then I felt like I was alone again.
Yes, as I said, my mother also has celiac disease (because its a hereditary disease) but our connection together as kin and medically diagnosed was different from a small child. I was heart broken when I found out my nephew didn’t have celiac and could go on eating gluten-full food as he grew in a strong, independent and well rounded person. I thought maybeI was going to have another male in the same boat as me, but, his journey was meant be different from mine. And I can’t be more happy and excited for him. I just thought, I had these notions that him and I would go on this journey together; eating gluten-free and talking about our lives with this restriction.
Not anymore. I felt alone.
Maybe I’m just jealous.
Maybe my selfishness is in fact a misplaced jealously of a small boy who doesn’t have to explain why he eats different and doesn’t have to worry about food at parties and functions in the public. However his life goes, I’ll still love him.
Celiac disease is a lonely disease when the wrong people are by your side. Or NOT at your side. To find those with celiac, don’t hide it. Yell it from the roof top. Tell the world.
With the passing of time, society has slowly started to realize the severity of allergies and the potential in which they can kill. Peanuts have been banned from schools, buses and some public places and followed up with praise from those who require this step to lead a safe life. It’s a step in the right direction to protect the ones that matter the most. The ones that can’t defend themselves and need everybody to watch over them; the children.
And every step taken towards allergy awareness is important.
For the most part, some children don’t understand the fuss that is put over them. It’s both a good an bad thing. If children can be taught about what could kill them, in food form, then they have an easier way to protect them in the future. A smart child coupled with caring adults makes the world of difference.
A good example of the tragedy and triumph of allergies in pop culture is in the television show ‘Freaks and Geeks’ where one character is deathly allergic to peanuts and a bully in the school thinks he is faking and puts peanuts in his sandwich at lunch time. The show was filmed in 1999 but takes place in 1980. Just based on this one series of events, you get a true idea of how far allergy awareness has come. And every step taken towards allergy awareness is important.
Teaching a child at a young age about the food that can harm them is a extremely double edged sword:
One one side, by educating a child, as young as possible that a specific food type could harm them to an scary degree is teaching child to take part in protecting themselves. But, what if knowing to much about what could harm them creates an introvert who refuses to participate in activities? Or creates a little person who is almost ashamed to do anything and doesn’t feel like they will fit in.
On the other side, by not teaching a child about what can harm them and attempting to do it on your own is dangerous. They would have no clue as to what to expect and when/if it happens, it is scary.
“Allergy to peanuts appears to be on the rise in children. According to a FARE-funded study, the number of children in the U.S. with peanut allergy more than tripled between 1997 and 2008.1 Studies in the United Kingdom and Canada also showed a high prevalence of peanut allergy in schoolchildren.” -from the FARE website
No allergy or food intolerance is worse than the other. Each one needs to be taken seriously.
With peanuts taken out of school and the proper care taken in the public, peanut allergy awareness has been elevated to incredible and commendable heights. The awareness surrounding gluten intolerance or celiac disease still needs a lot of work. We can’t be in the classroom with the kids and see what happened when they eat their gluten-free lunch, or say a five year old in kindergarten trying to explain why they can’t share snacks with their desk buddy. Sometimes the misinformed diet (which is also the fad dieter’s gluten-free diet) projects in your family and out onto a your child, which they then repeat to a child who cannot defend themselves when they are made fun of for being gluten-free.
A child with a legitimate and medically diagnosed gluten-free diet can’t share the cupcakes at the school pop and cheap party and shouldn’t really play with the wheat-based plasticine.
It all comes down to the message I received. It broke my heart, and I can’t not think about it.
No allergy or food intolerance is worse than the other. Each one needs to be taken seriously.
If you’re an adult who bad mouths allergies or fad diets, do what you want, just be aware of who is around you. If one child hears it and that information trickles down to a fellow student with deadly food issues… the cycle will never stop.
King Gluten Free is a diagnosed celiac since 2008 and his children don’t have allergies or gluten issues, but his family member do. Sometimes all a 4 year old needs is a role model who can’t eat gluten. I want to be there for him.Find Jordan Middlebrook (AKA King Gluten Free) at Instagram by clicking HERE
I was diagnosed with celiac disease (an autoimmune disease where the lower intestine’s ability to absorb the protein ‘gluten’ is practically impossible) in 2008 when I was 27 years old and at that point in my life I was well into being an adult. I had a full time job, I was married, I owned a house and I was getting ready to start a family. In the 27 years leading up to my celiac diagnosis I HAD NEVER EATEN A POWERBAR.
It wasn’t that I was ever actively avoiding them, it’s just that there was a never a though too grab one as I was on the go. I knew they existed, the idea of a PowerBar is steeped in pop culture that its hard not to think about PowerBar as THE nutritional, energy and protein bar. As I grew up, movie characters where saying they were going to grab a PowerBar or scenes in television had someone eating one or again, mentioning them. It’s funny how in all those years I never tasted a PowerBar, and now as a 36 year old man, I’m diving in. Head first. Mouth first. Eyes first. Now its just starting to sound weird how many firsts. Welcome to me eating a PowerBar for the first time.
I am no science guy. I understand things and how they work.
In 2016 PowerBar created the entirely gluten-free ProteinPlus Bars: lower sugar, 20 grams of protein and 5 grams of fibre. When all balled up into portable bar form, you get a handy little pick me up.
With celiac disease, any individual like myself needs to eat 100% gluten-free in order to maintain a healthy body and lifestyle.
If there is anything you need to take away from learning about what celiac disease is; its just that, what you read above. Having gluten-free food options is always a plus, and when protein bars like these new PowerBar ones come out and are readily available for us diagnosed celiacs on the go, its a blessing in disguise.
There are two new gluten-free flavours:
Creamy Chocolate Peanut Butter is exactly what you think it is. The description of the actual bar ends up being exactly how it tastes. There have been times when you might have a protein bar and there is a subtle, if not heavy taste of chemicals, the gluten-free PowerBar ProteinPlus was no where near that. And judging by how heavy the box was when I picked it up, I had a sense that it would be that way. The opposite is in fact true; the Creamy Chocolate Peanut Butter bar could also double as a candy bar in a grocery store. While the bar might feel heavy, it’s perfect in taste.
If not for the fact that, too much protein would do me in, I could eat a box of these bad boys with no problem. The Creamy Chocolate Peanut Butter was a surprise to my taste buds, a good surprise.
I am no science guy. I understand things and how they work. The idea behind protein and energy related to the human boy isn’t lost on me. The PowerBar Trisource blend of three different types of protein kinda blew me away. The blend is designed to digest at different intervals throughout out the day to continue providing energy to your person. Its funny how the simplest answer like sustainable energy for your body via varying breakdown times makes so much sense. Its what you need to keep going.
The new gluten-free PowerBars ProtienPlus did work for me over the few weeks I had a box of them at my side.
The Lemon Poppy Seed by PowerBar was a tough one to wrap my head around. Right off the bat, I’m not a fan of lemon flavoured food. I will avoid it at all costs. I waited until last to try the Lemon Poppy Seed bar because frankly I’m just not keen on it. The front of the box has a loaf of bread to entice you to think of this wheel consuming the new gluten-free bar, and the look of the actual bar, when opened, was exactly like what a loaf of lemon poppy seed would. It was crazy. Taste wise, okay. It was a lighter flavour that I truly expected, which isn’t bad, but I felt it was a little more dry that in should have been. Granted, I may be biased to the fact that its lemon, and it was well enough tasting, it just wasn’t my cup of tea.
PowerBar was often asked in their products were gluten-free and now they can claim that the two new products, the ProteinPlus bars and it’s two flavours are gluten-free. Formulated to give you energy and work with your body. As a father of a six year old girl who never stops moving. A full time outdoor property maintenance worker. A cartoonist for an international magazine and a television host can mean a lot of meals on the go, and with all those jobs and work, a lot energy needs to be filled. The new gluten-free PowerBars ProtienPlus did work for me over the few weeks I had a box of them at my side. And along with the fact they worked for me, the Creamy Chocolate Peanut Butter tasted great.
I was paid for this review and received free product by PowerBar Canada. Make sure you click all the links in the above review to take you to the PowerBar site and find out for yourself how you feel about the ProtienPlus bars by PowerBar.
Everywhere you look there are companies, not just food companies, out there trying to create the idea they operate as a industrious family. And, unless you get a chance to visit the factory of business and it’s buildings, no one ever has the opportunity to know this first hand. I had a chance to see this family atmosphere first hand when I visited the Glutenberg Craft Brewery in December of 2016.
Glutenberg and their story isn’t new to how amazing foodstuffs are created; friends wanted to create a new and great tasting gluten-free beer and through dozens of tests and over a year of trial and error they created an award winning gluten-free beer. It’s what has happened in all those years since the creation of ‘the Gutenberg Blonde’ that sets them apart from all the other beer companies: they care.
They care, not just about making a traditional beer taste with all gluten-free ingredients, but making sure that their brand treats its fans, drinkers and supporters like family.
Read the Glutenberg story directly from their site by clicking HERE.
I was able to visit the Glutenberg Craft Brewery in Montreal, Quebec to tour the facility, see the process in which the gluten-free beer was made and sample some of their amazing beer flavours (most of which aren’t available in my home province of Ontario). I didn’t just get to visit Montreal (which I have never done before), I also got to take a train from Toronto to Montreal (something I also haven’t done). The whole day was filled with amazing firsts. And the tip on that iceberg was visiting the Glutenberg Craft Brewery.
While some flavours of beer I sampled didn’t come out as my favourite in the line, there was still a remarkable taste to every one of them, and every one of the gluten-free beers that Glutenberg makes deserves to be tasted and enjoyed. Glutenberg has attempted AND succeeded in doing what they originally set out to do: make a good gluten-free beer. I have had my share of gluten-free beer because I am a diagnosed celiac, some good some bad some terrible, and I can safely say that Glutenberg has their stuff together. All of their hard work has paid off and it reflects in the end product of the gluten-free beer.
What started out as a small company, Glutenberg still maintains that sense of a small company, even as it expands itself past international borders and still considering themselves a craft brewery. When looking at how in the past, traditional craft breweries where the tastes accommodating and manufactured for the area or local towns, Glutenberg is still a craft brewery, manufacturing small batches in MANY different flavours, and while doesn’t just stick to its own area, it is the craft brewery to the world. Their awards prove that.
In January 2016, Glutenberg was just available in Ontario after being available in other provinces and territories in Canada for a number of years. Even being available in almost two dozen states in the United Sates of America. I had e-mailed the company to keep me in the loop as to when I could get some of their beer from my local liquor store. As fate would have it, as a blogger, as King Gluten Free, the Glutenberg Craft Brewery was awesome enough to send me four beers to be sampled. I. Fell. In. Love.
I wasn’t able to spend to much time in Montreal when I went to visit the Glutenberg Craft Brewery. I caught the train early in the morning on a Friday and spent five and a half hours on the train listening to music on my phone, writing Christmas cards and texting my wife. All the while anticipating my first trip to Montreal. After the afternoon spent at the brewery I was back at the train station and on my way home to Toronto via the train. It was a long day, a fruitful day and an exciting day.
I have never hidden the fact about how I feel about food and the connection I have to it as a child and even an adult. Finding a gluten-free alternative to something I had as a child now as an adult diagnosed with celiac, really does take an emotional toll on me. I remember the first time as an adult I found out that Post ‘Fruity Pebbles’ were gluten-free and proceeded to eat them as a diagnosed celiac, and all the memories of Saturday morning cartoons came flooding back to me and I wept as I ate. My spirit was filled with love and joy as I could again eat something that connected me to the past. It’s kind of like smelling something that reminded you of your passed on Grandfather…only this time, it was food.
From it’s inception, Glutenberg has been creating great gluten-free beer…
In January 2016 when the Glutenberg Craft Brewery happily supplied me with a few gluten-free ‘Glutenberg Blondes’ I was once again filled with love and the memories that took place when I was a young man who had no clue what celiac disease was and was still years away from being diagnosed with it (I was diagnosed in 2008), Glutenberg tasted like high school. While some people would say it was either the best or worst time of your life, I was taken back to the times me and my buddies would go to the cottage and drinking barley based beers or the time my little sister and I would sit in the back yard (funny enough at my Grandparent’s) and drink those same barely based beers on what we eventually referred to as ‘Fun Friday’. The Glutenberg Blonde reminded me of a beer I once loved (and could not have because of my diagnosed celiac disease) and triggered something in me that has been undying since that very first sip; my love of the Glutenberg brand.
From it’s inception, Glutenberg has been creating great gluten-free beer and expanding to create new and promising ways to help out the other craft breweries around them that need just that little bit of help. A program where the vats at Oshlag (their own non-gluten-free distillery) can be rented out to other craft breweries and make much bigger batches and maximize Glutenberg’s own competition’s profit margin and creating bigger batches of a different craft beer. Or a program that helps to distribute smaller breweries brands and help get those unknown and unnamed craft brews to those who might never get it, and help out the small guy.
Glutenberg has become the big brother to all the craft breweries it works with. I stood in a room filled with all kinds of other cans and bottles of beer and was taken aback at how Glutenberg is always helping out those who need it. Companies that are looking for that outreached hand to get their name out there. Glutenberg not only treats everyone in their brewery like family, but even their competition gets treated as such; FAMILY.
It’s not everyday you get to sample award winning gluten-free beer with the Chief Operating Officer of a brewery, and aside for great tasting drinks, I was treated to amazing conversation in an environment that made me feel at ease. Glutenberg not only supplies gluten-free beer to celiacs all over it does amazing things locally to recycle beer cans, and consistently sending back the spent grain to the providing farmeronce Glutenberg has finished extracting the sugar from it. The farmer can then feed his soils with the spent grain. Glutenberg has different technologies to create gluten-free beer with presses and countless ways to create new and innovate products that are all gluten-free and safe for me… a diagnosed celiac.
As for how ALL the beer I tasted: (click HERE to see what they offer) I loved them all. From the Blonde to the IPA (which is one of the best beers I have ever tasted) to the White and I even got to take a stab at tasting the ASAP gluten-free beer which is only avail be in Quebec at the time of my visit. A gluten-free IPA infused with flavours of Pineapple, Simcoe Hops and Peach. All great all unique. Even tasting a gluten-free beer made with olives and another made WITHOUT maple syrup that tasted like maple syrup. All of the beers that Glutenberg allowed me to taste were just great.
While some flavours of beer I sampled didn’t come out as my favourite in the line, there was still a remarkable taste to every one of them…
It’s not everyday you get to sample award winning gluten-free beer with the Chief Operating Officer of a brewery…
I spent the day travelling to Montreal, Quebec, toured a brewery, sampled gluten-free beer and had great conversations with some amazing people. Glutenberg welcomed me with open arms and if you’re not a fan of gluten-free beer, give Glutenberg a try. And if you’re a fan of drinking beer, give Glutenberg a try.
I thank everyone at the Glutenberg Craft Brewery for taking time out of their day to show me around.
My train ride to and from Toronto, Ontario to Montreal, Quebec was paid for by the friendly people at Glutenberg.
As a human being you probably have a desire to go out to a restaurant and have a bite to eat. Whether its a solitary dinner alone, a private intimate evening with a loved one or a group outing with friends or family. Chances are, you have thought about it at least once. For those who don’t know, this kind of thinking can cause anxiety to a diagnosed celiac. No one considers food to cause anxiety. Guess what? It can.
Finding the right place to eat out can be a trial on its own.
There are many factors to consider when deciding to dine out and eat at a restaurant. Making sure that they have some semblance of what gluten-free is should be the first sign that you’re possibly in the right hands. Gluten-free menus are often indicators that a restaurant has their stuff together an dare doing what they can to provide meals for everyone. It’s always amazing when eating establishments can create gluten-free food.
Above everything, a fully gluten-free restaurant is the PLACE you want to go. As diagnosed celiacs you know that your butt is covered and there is no worry about cross contamination of gluten-full and gluten-free food. The shame of it all, is that a fully gluten-free restaurant is hard to come by (YES there may be on win your town, but that doesn’t mean that there is one in every town).
You can’t truly search the county for a gluten-free restaurant when you live in a small town in Northern Canada, it’s just not practical.
The safest place for diagnosed celiacs to eat is obviously their own home, but the need to go out, interact and be social can be far to great of a feeling than sitting home all night and all day and for the rest of your life stewing about not being able to go out for lunch with friends.
Yes. Salad is always an option.
The only rule that truly exists when dining out as a diagnosed celiac is whether or not the diagnosed celiac is comfortable to do so.
With salad available, that means some kind of gluten-free food is available at the dining hall and you can go out to eat.
It’s not always enough. But it’s a start.
Is there anyway to tell in a restaurant truly cares about the need for you to eat gluten-free?
1) If there is an option on the menu for gluten-free you can be assured in the fact that the kitchen (and subsequent chain) have some knowledge abut what gluten and gluten-free is.
2) When telling the server about having to ‘order from the gluten-free menu’ they as if its due to celiac disease or an allergy. Better yet, any mention of celiac disease from this person should give you a better sense of security.
3) Does anyone in management come out to your table to talk to you? Kitchen Manager. Head Chef. Restaurant Manager. Assistant Manager? These are all people that should come out and see you and see that your order is processed properly.
There is no list or rules of how to do gluten-free at a restaurant. The places that have gluten-free options often govern themselves and do a pretty good job at it. By self regulating they can control what comes and goes from the kitchen. Each person has a job to do and handles one particular section of food and can be monitored more closely. The only rule that truly exists when dining out as a diagnosed celiac is whether or not the diagnosed celiac is comfortable to do so.
None of this applies to eating out in TRUE ‘rules’ fashion. Each individually diagnosed celiac is in charge of their own bodies and what they eat. Under no circumstances should anyone be told what they can and a can’t eat. If you have to eat 100% gluten-free for medical reasons like being diagnosed with celiac disease, then, make sure you do. Make sure you feel safe when you dine out and make sure that your voice is heard.
There shouldn’t be any surprises when it comes to my post-secondary education. I also never finished college. I have no problem in admitting that I never made it through one year, or one semester. At the time I never considered that I was a ‘school person’. Sometimes I still think that I’m not one to take instruction from anybody (I can be stubborn that way). Then I look back on my time in the late nineties when I attended college for Art Fundamentals and see that I was partial right, and way way wrong.
FAST FORWARD TO 2017
One day while on set at Georgina Life (the television show I host on Rogers TV) I met with some of the amazing people at the South Shore Toastmasters club and they were riveting me to my seat as they spoke about finding confidence in yourself by finding your voice. A public speaking club which helps you develop better social and public skills and aides in your ability to be present in public speaking.
I recalled my memories of how in college; there was a seminar class, where I would have to spend the entire semester creating and building a subject and then presenting and hour long seminar about my topic.
I went to the first class, and no class past that. I dropped out of college.
Public speaking was frightening.
Even high school presentations I had my issues. Even to this day I still get extremely nervous at the idea of doing it. It’s all something that followed me from those days as a teenager and those days as an undiagnosed celiac.
I was diagnosed with celiac disease in 2008 and I was well into being the person I was meant to be and It was hard to change a lot of who I was. The diet was fairly easy. Switching from gluten rich foods to an all, 100% gluten-free diet was easier than I though, and now in 2017 it’s second nature.
NOW, I see that my fear of public speaking was partially because of my undiagnosed celiac and wasn’t always a figment of my imagination. I see that those times I buckled under the pressure of someone watching me talk was because the toll gluten was doing to my insides and ultimately affecting my mental state. Of course this revelation took almost two decades to figure out, but if I was diagnosed with celiac disease at an earlier age, I could have finished college and become the visual artist I intended to be or finished college and became a world renowned motivational speaker.
But I didn’t.
Here’s what happened.
I was diagnosed with celiac disease when I was 27 and then almost nine years later I became the host of a television show (speaking to the possibility of more that 10,000 people live) and a lot of my fear disappeared. Not before I was diagnosed with celiac and straighten out my shit. But, because I am now eating gluten-free I can maybe function the way I was meant too and not someone in constant pain due to the improper foods. Now, because I was diagnosed with a disease that is so invisible, I wasn’t diagnosed until I reached the pinnacle of my sickness.
My story isn’t new. But it can help someone to see what the potential of celiac can do.
Not only have I gone on to speak LIVE on a television show. I’ve also spoken about my celiac journey for the GLUTEN FREE GARAGE, GLUTEN FREE WELLNESS EVENT and the GEORGINA HOME & LIFESTYLE SHOW. All public speaking forums and all ways to motivate others that just because I was once terribly frightened by public speaking, a little bit of diagnosis and bravery can go a long way. Remembering that I still get butterflies and sweaty and gross when I have to go and speak publicly, but now it’s not crippling and now I recognize the possible reasons why.
If you suspect celiac disease GET CHECKED.
If your medical practitioner won’t check you of it. FIND ONE THAT WILL.
If being diagnosed with celiac disease and eating 100% gluten-free ends up corrections those things that were always written off as ‘shy’ or ‘mousy’, then why not take a stab at getting properly diagnosed?
It can’t hurt.
It can’t hurt you or your future.
Find Jordan Middlebrook updating DAILY on Instagram by clicking HERE and creating cartoon for Gluten-Free Living Magazine all through 2017.
Keep coming back on the 15th of every month for all of 2017 and The Celiac Action Duo will be sure to entertain and surprise and advocate celiac disease on the sly and fight bad guys like you’ve never seen.
As a diagnosed celiac, I don’t consider myself abnormal. There is nothing different about me that should change the way I feel about myself. YES I have to eat 100% gluten-free to maintain a healthy life and body, but thats normal.
Labels can be hurtful, and when diagnosed celiacs start to be called something the opposite of ‘normal’ then we have a problem.
What someone eats shouldn’t be a defining feature of a person’s ability to be normal.
It comes down, not to diagnosed celiacs calling themselves ‘not normal’ but others doing it. We all know it can be tough to see a child struggle to fit in with their class at a special occasion where a bunch of cupcakes come in to celebrate a birthday or a new case of Play-doh has just arrived. A child diagnosed with celiac disease needs to stay away from these things and there is an inherent responsibility from the parents to the teachers to the child themselves to know that.
It can be tough to install that in all partiers involved.
The severity of celiac is never apparent because it’s an invisible disease and the teachers might not see the effects when the child gets home. And the parent might not know a child has ingested gluten because the child is to scared or ashamed to admit that they did it.
CELIAC DISEASE HAS A LEARNING CURVE.
No one is perfect, but we all have to learn to live with it.
By telling children that they’re not normal because they have celiac disease or they can’t eat gluten and therefore can’t have the birthday cake is just wrong. A child with celiac disease is just as normal as the next, they just can’t have gluten. What someone eats shouldn’t be a defining feature of a person’s ability to be normal.
Its troubling when you hear a parent say “my little boy/girl wishes they could be normal and participate in a birthday in class”. Negativity is learned and who ever is creating that low opinion of a child diagnosed with celiac disease needs to stop. As with children, friends have to stop telling their diagnosed celiac friends that they’re not normal. It’s a trickle down effect that is the opposite of what celiac awareness is.
I have to eat 100% gluten-free to maintain a healthy life and body, but thats normal. Normal for me you ask? Yes, but I also have to eat fruit and veggies and get the proper vitamins and minerals as much as any other person without celiac disease. I just happen to not be able to digest gluten.
Telling someone they’re not normal because they eat differently just breeds contempt and anger. Children can grow up with a skewed sense of self and impose that on their everyday goings-on and adults can take that information and lash out with anger and create an entire different set of problems for themselves. Not just emotionally, but externally and create a bubble that diagnosed celiacs don’t need.
Diagnosed celiacs need to stick together, no matter what age, and correct those who might call them ‘not normal’. We are normal. We just have to eat gluten-free. Thats it.
If someone says you’re not normal, just correct them.
Any way you slice it or anyway you look at it; people diagnosed with celiac disease and people with food allergies (deadly or otherwise) need to stand beside each other.
More often than not you will find an individual who has been diagnosed with celiac disease might also have another food allergy. But, just because you have either or, it doesn’t mean that you can’t support one another. Schools step it up and take peanuts out of the equation to protect those who are in dire need of protection. This is a huge plus, and the right step in the direction of creating awareness for food allergies and eventually food intolerances.
Recently, I met a person who told me that when their children were in school (in the 80’s) they sent peanut butter sandwiches in their lunches. When questioned as to why, especially with the ban on peanuts in the school system, the only answer I got was that peanut butter alternatives and other options were to expensive. For this parent, the only viable option was peanut butter sandwiches everyday. Money was a factor. At that time, who could afford all the other choices for sandwiches?
There is and was a ban for a reason.
But, what kind of person disregards the safety of another child? How often does this sort of thing happen? Does this happen in our 21st century society?
In Canada, 1.52 per cent of children are allergic to peanuts, based on a history of allergic reaction. The comparable figure in the U.S., from a 2002 survey, is .83 per cent, representing an 83 per cent higher rate in Canada. Similarly, the rate of tree nut allergy is about 120 per cent higher for Canadian children: 1.13 per cent have a history of reaction here, compared to .51 per cent in the United States. – Allergic Living, 2010
Our children are always the first thoughts in our head, but what is the price of someone else’s child life? Stopping peanuts from coming into the schools is the first step to prevent terrible things to children and on the grander scale, families. It might cost more to send a sliced meat sandwich to school or a PB substitute, but if a child dies because of one parents disregard, negligence or lack of caring, where does that leave the world? What does that say about how you feel about other people?
Parents protect their children like fierce lions.
Other parents should respect that notion.
If your child had or developed a deadly allergy to something wouldn’t you want others, like parents the community to take all the precautions available to prevent a terrible accident?
Food allergies and people diagnosed with celiac disease need to stand together. Not because its required, but because both can often be misunderstood and both can often come with a poor sense of community understanding. Gluten and peanuts are worlds apart when it comes to allergies, intolerance and immediate threat, but if a governing body ELIMINATES it from schools, you need to take notice.
Eggs, shellfish, mustard, soy; to name a few, that need more understanding in the public. Companies label them to keep the individual consumer informed, but world as a whole needs to know that these types of thing, allergies, need to be taken 100% serious. Food allergies need to be taken as serious as celiac disease and celiac disease needs to be taken as serious as food allergies.
Food allergies can be deadly.
Every one needs to know that and everyone needs to take that serious.
Celiac disease is serious as well and thats why those with celiac disease support those with food allergies. We all live in the same spectrum of misunderstanding and public negativity, with the same need to just be accepted as people. No one is looking to be singled out, deadly food allergy sufferers and diagnosed celiacs just want proper information to be conveyed to prevent terrible events from happening.
One person’s lack of caring could be one families tragedy.